parents, and advocates for policy
creation in an attempt to improve the lives
of disabled people. They have great
resources for parents, adults with
disabilities, and educators.
NICHY (National Information Center
for Children and Youth w/ Disabilities)
NICHY is a list of various resources for
people with disabilities and their families.
The site provides links to various
education, learning disability, and mental
NIH (National Institute of Health)
NIH is part of the U.S. Department of
Health and Human Services and shares
information on new developments and
studies regarding mental and physical
health. Stephen Groft at the office of rare
diseases provides information on which
hospitals and physicians are doing
research or clinical trials on any disease.
NORD (National Organization for
NORD provides information and resources
for patients, families, other organizations,
and medical professionals regarding rare
disorders. They also advocate for
consistent and fair government policies
and support innovative research.
Social Security Supplemental
The Social Security Administration
provides certain benefits to disabled
adults and children who have limited
income sources. Give them a call or
check out their website to find out how
you can get these benefits.
While located in Wisconsin, the
Waisman Center is an excellent
resource for staying up to date on the
latest research on developmental
disabilities and neurodegenerative